If your loved one has heart problems..Dont look to the internet for comfort!

You find out that your loved one has a heart problem. The first thing is to search everything on the Internet to find out everything you can about the diagnosis right? WRONG! The best thing to do is to call the Cardiologist office, and ask if they can recommend sites for you to become more knowledgeable of the diagnosis.

I regret to say that I did not do this, and I wished dearly that I had. The Internet will scare you half to death, and all I kept doing was trying to find a better site that had better news than the one before.

I am embarrassed to say this, but at one time I didn't want Jason to receive a donor heart because I thought with the LVAD period, that he would have more time with me.( See what it can do!)

Live and learn... Some good sites to go on If you know your loved one needs an LVAD are: Thoratec.com ( the makers of this awesome equipment) and Mylvad.com. Now I'm sure there are plenty more, but those are my favorite.

They will also have classes at the hospital where you loved one will be receiving the LVAD, but I have always preferred LOTS of information!

If your Having Heart problems.. Don't Settle for the B Team..Get the A Team!

First off, to those of you that don't know Jason, he is a very laid back, go with the flow type a guy. He thinks EVERYONE has his best interest at heart. In an earlier post I mention that Jason had a doctor, that I didn't care for too much. He was the doctor that told him that he only had 3 to 5 years ( in 2009)  left and did not want him to working,because he wanted him to enjoy the rest of his time here.

When I met this doctor myself in 2010, I wasn't impressed. He seemed very irritated with all the questions I was asking and always seemed like he was in a hurry. When I always at the hospital with Jason in May 2010, I have no doubt that God lead me to every question I asked, and he gave me the strength not to back down.

When I asked him would Jason be holding my hand, and rocking beside me in a rocking chair when he was 60..the doctor said no. I can't even begin to describe that feeling I felt. One thing Im sure of though. God DID NOT make me wait 35 years to find my perfect love, just to take him away from me..

Oh- and I will add that the doctor NEVER told us about the LVAD!!

Thank goodness we found the A team at MCV. They are the best doctors and nurses and are more than happy to answer any questions I have. That meant alot to me..because Its not just Jasons life..this involves everyone that loves him. 

The message that I want you to take from this post STAND UP for your loved one. I have stand up for " my Jason" more than once, and he didn't always like it. You know what though?  I will never regret fighting for the best care for  him, because I always do..and always will!